Latest Blogs

Below is a list of blogs written by ACPA members and the National Office Team.

If you are interested in writing a blog, please email Alyssa Kirkman for more information.

*Disclaimer-The American Cleft Palate-Craniofacial Association and the Cleft Palate Foundation claim no responsibility for the content published by others on their web sites. Published content does not imply endorsement of either the organizations or the content of the meetings.

A Thanksgiving Wish

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The American Cleft Palate-Craniofacial Association supported patients and their families in 2017 with referrals for care, information and education. The generosity of our donors makes this vital work possible, every day.   Recently, the mother of a newborn with a cleft palate and lip — we’ll call her Jenny — called Cleftline. She was unsure of what steps to take. Our staff reassured Jenny while providing valuable information about her daughter’s condition. Most importantly, we referred Jenny to an ACPA Approved Team nearby that could provide the multidisciplinary care her baby would need.  We helped her by providing confidence, support and resources for ...
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ACPA 2018 College Scholarship season is now open. Scholarships are available for students born with cleft or craniofacial conditions who will be rising freshmen or continuing college students at US-accredited institutions in Fall 2018. Here is a message from one of our previous scholarship winners: "I am so blessed to have been chosen for this scholarship…This scholarship will help me pursue a degree in Biomedical Engineering with a possibility of medical school in the future. I was born with a bilateral cleft lip and cleft palate. Since I was four months old, I have had ten surgeries to correct my cleft, my most recent being a facial ...
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We’ve shared her story , and her connection with ACPA before.  Charlotte Gould is an amazing 9-year-old. Back in 2008, her parents found out during an ultrasound that Charlotte would be born with a unilateral cleft lip and cleft palate, and during their journey, they found ACPA. At the age of 4, Charlotte decided to ask for donations instead of gifts for her birthday to donate back to the clinic.  She also started buying ACPA Bears to give to each patient born with a cleft.  In 2017, Charlotte was recognized by the ACPA Approved Team at Barrow Cleft & Craniofacial Center in Phoenix for the business she started sewing and selling dolls to raise money ...
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With the movie Wonder coming out soon, I'd like to take the opportunity to reflect on the theme of kindness, and to consider how to spread more of it in this increasingly divisive and controversial world.  I'd like to hear how others are reaching out to their communities, or through this network, or in your homes, to break down barriers and promote acceptance.  I will start the dialogue by sharing some of our "kind acts" ideas.  First off, in order to be successful at spreading kindness, one must themselves be kind. This isn't always easy, so we decided to schedule "kindness meetings". Where we can sit around for an hour and brainstorm about kindness. Through ...
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ACPA Approved Teams are continuing to spread Wonder! Excitement has been building and pre-screenings are taking place around the country this week.  Here’s what two more teams are doing to celebrate. The Mercy Kids Cleft Lip/Palate and Craniofacial Team in St. Louis is working with Mercy Clinic Kids Plastic Surgery to celebrate Wonder with a kindness campaign throughout the month of November.  The activities being offered include: calendars with acts of kindness; painted rocks with kindness messages; and kindness trees.  Their campaign was covered by a local news station.  View the story. The Mercy team is also holding a screening in conjunction with ...
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Five Ways to Give

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ACPA members make monumental impacts every day – in the lives of patients and families, in the medical and academic fields and in communities nationwide. Making an impact can also be as simple as one “click.” ACPA supports cleft and craniofacial families and professionals through education, support, research, advocacy and interdisciplinary team care. Your tax-deductible gift of any size will have a direct impact on those we serve. So, how can you do your part? Here’s the top five list: Become a reoccurring donor . Shop with ACPA on Amazon Smile . To change your charitable organization, go to Your Account and select the option to Change Your ...
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Two more ACPA Approved Teams are hosting Wonder events in November! The Cleft and Craniofacial Center at Cincinnati Children’s Hospital has organized a private viewing of the Wonder movie on Nov. 20 for families and providers.  The Craniofacial Team at Loma Linda University Children’s Hospital is hosting sponsored movie screenings for their patients and families on November 16. They will host meet and greet prior to the screening (RSVP is required).  Tickets are still available to public screenings at the Harkins Theatre in Redlands, CA. Click here to read previous blog posts about ACPA related events. Are you holding a Wonder ...
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ACPA membership grants you access to medical professionals and those interested in the treatment and/or performance of research on oral cleft and craniofacial conditions. The ACPA Online Community is the place to discuss cleft and craniofacial related topics online. The ACPA Online Community is an online forum for members to ask questions, share news stories and network. Do you have a question for the cleft and craniofacial care community? Or perhaps you have a resource you would like to share with your colleagues. Log into the Online Community and join the discussion…or better yet, start a new conversation. Since its launch, over 150 discussions have ...
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It's so exciting to see all of the activities and events surrounding the release of Wonder.  Here are three more events associated with ACPA Approved Teams: Texas Children's Hospital Plastic Surgery Craniofacial Clinic in Houston, TX is excited to invite you and all of our extraordinary patients with craniofacial differences to a special advanced screening of Wonder on Wednesday, November 15, 2017.  The free screening will be held at the AMC Studio 30 theater at 2949 Dunvale Road in Houston. Doors will open at 5:45 p.m. with a red carpet and photo opportunity. The movie will begin promptly at 6:30 p.m. At the conclusion of the movie, there will be ...
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For every parent, the first year of a baby’s life requires special attention and care. When a child is born with a cleft or craniofacial condition, a parent’s nurturing involvement and the support of specialty care providers is especially critical. ACPA offers an educational booklet called “Your Baby’s First Year” as a tool for parents navigating the early months of their child’s health care journey. Just like any other parent, your first and primary concern is for your infant to thrive and remain healthy… While caring for an infant with a cleft is the same as taking care of other babies in many respects, your child may require special assistance with ...
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We are so excited to see the momentum growing for the release of Wonder !  ACPA is hosting a screening in Durham, NC, and ACPA Teams are holding events around the US: Connecticut Children's Medical Center Craniofacial Disorders Team in Hartford, CT; The Texas Cleft-Craniofacial Team in Houston, TX;   and the Lancaster Cleft Palate Clinic in Lititz, PA. Two more ACPA Approved Teams are also hosting events: Barrow Cleft and Craniofacial Center in Phoenix, Arizona will be hosting a special Wonder viewing with patients and their families on Sunday afternoon, November 19th.  Joining them will be members of the Craniofacial team and their families.  ...
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How we found out we were having a son and that he was going to be born with a bilateral cleft lip and palate was nothing short of a surprise.  We went through the initial doctor visits and scheduled our first ultrasound at 17 weeks hoping to find out the sex of our baby. I made the appointment after my daughter got out of school so that she could be with us when we found out. All of us were excited and we went to the ultrasound with great expectations. Initially, everything was going as planned and then I saw the nurse’s face change, her back arched and she kept squinting at the screen and moving the device around.  She then stated that she was getting the ...
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The release of the movie Wonder is an opportunity to educate and spread awareness of cleft lip/palate and craniofacial conditions. We are excited to host a movie screening in Durham, NC on November 19.  We have had a great response to our screening and had to upgrade to a larger theater this week - that means we still have tickets available for anyone who would like to join us. Learn more about the ACPA event. This week we learned of two more Wonder screenings: ACPA Member Pat Ricalde is holding a contest for patients to attend a screening on November 18, 2017 in Tampa, FL. Find out more here . The ACPA Approved Team at the Lancaster Cleft ...
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On October 15 th , ACPA participated in the 4 th Annual CleftStrong 5k in San Antonio, Texas.  The CleftStrong race has raised thousands of dollars benefiting ACPA's mission. I wish you could have all been there to experience it. Led by race founders Chelsea and Ray Ortiz , parents of a child born with cleft, a crowd of volunteers stepped into action at 5:00 am on race day. As the sun rose, kids in storybook costumes and teams with dozens of matching t-shirts arrived at Mission County Park. They gathered under a large pavilion for an opening ceremony, which featured two well-known guests from the cleft-craniofacial community.  Lacey Buchanan , author ...
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In celebration of 75 years of Team Care, the American Cleft Palate-Craniofacial Association (ACPA) is accepting submissions for the art contest. This contest invites people of all ages in the cleft and craniofacial community to use their creativity to raise awareness of cleft lip, palate and craniofacial conditions through visual art. The winning artwork will best showcase the theme: My Cleft Journey The contest is open to all who have a cleft or craniofacial story to share. Please read the official rules.    All entries must be postmarked no later than October 31, 2
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My career has been evolving into a combination of craniofacial scientific research and public engagement and advocacy for awareness of craniofacial anomalies and the advances in medicine and research for them. My life experience with Treacher Collins syndrome has placed me in the unique position of an ambassador between the personal life experience side and research and medicine and the public. Back in my childhood and youth, I was occasionally featured in my local and state newspapers, on TV, and on radio to tell my story, and once authored a chapter in Jill Krementz’ 1992 book, How It Feels to Live with a Physical Disability. Over the years, my opportunities ...
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We are excited to share the events that ACPA Approved Teams are holding to spread awareness with the new movie Wonder . ACPA is hosting screening in Durham, NC, and Connecticut Children's Medical Center Craniofacial Disorders Team is holding an event in Hartford, CT.  Read more. We are pleased to share that the Texas Cleft-Craniofacial Team is holding an event on Saturday, November 18 in Houston, TX .  This is their 3rd Annual Family Social Event, and they are excited to host a Wonder screening at the Edwards Houston Marq'E Cinema. Our mission is to bring cleft awareness to the community and help patients and families cope with their craniofacial ...
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Peace of mind is priceless. ACPA Family Services has spoken to more than 400 families in 2017 who have called 800-24-CLEFT. Many call after finding out their child has a facial difference via an ultrasound or with questions after the birth of their child. We provide information and assist with a variety of needs on the phone, via social media and by email.  “ACPA's patient advocacy is robust and dynamic. I know I can count on your help in finding the right resources.” “A mom requested sample publications for Cleft Awareness Month for activities at church. She said that she uses the ACPA website every day. She wants to bring awareness to what cleft is ...
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ACPA Member Dr. Arun Gosain has been elected President of the Plastic Surgery Foundation .  The Plastic Surgery Foundation and the American Society of Plastic Surgeons (ASPS), the world's largest organization of board-certified plastic surgeons and foremost authority on cosmetic and reconstructive surgery, named Arun Gosain, MD, president of The Plastic Surgery Foundation. Dr. Gosain will take office at Plastic Surgery The Meeting, the Society's annual scientific meeting, in Orlando and will serve for one year.  “It is truly an honor to serve as the president of the Plastic Surgery Foundation,” noted Dr. Gosain. “I look forward to leading this global organization ...
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The release of major motion picture Wonder is an opportunity to educate on cleft lip/palate and craniofacial conditions. The major motion picture, starring Julia Roberts, Owen Wilson and Jacob Tremblay, is based on R.J. Palacio’s book about a boy with a facial difference.  We are excited to host a screening of Wonder o n Sunday, November 19, at the Southpoint AMC Theater in Durham, NC.  Read more about the ACPA screening on our website. We are also excited to share more about what ACPA Approved Teams are doing to spread awareness.  Connecticut Children's Medical Center Craniofacial Disorders Team is holding an event to celebrate the WONDER of coming ...
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