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New ACPA Publications for Patients and Families

By Alexis Giannattasio posted 11-13-2019 11:51 AM


TCS.jpgWe’re excited to announce two newly revised publications for patients and families: Treacher Collins Syndrome and Dental Care for a Child Born with Cleft Lip and/or Palate.

Treacher Collins Syndrome, previously an ACPA factsheet, is a booklet that answers common questions related to the craniofacial syndrome. The booklet covers topics such as facial differences related to Treacher Collins Syndrome and possible treatment options. It also features 2019 ACPA Scholarship Recipient Casey on the front cover, who was born with TCS.

ACPA’s newly revised factsheet, Dental Care for a Child Born with Cleft Lip and/or Palate, addresses different types of dental care needed by many patients, including prosthodontic and orthodontic treatment. At the end of the factsheet, readers are encouraged to coordinate dental care with all other medical care, especially the patient’s team.

“All types of dental care need to be coordinated with other cleft treatment in order to achieve the best possible results. A speech therapist on the cleft team, for example, needs to be aware of how current dental treatment affects speech. Dentists, orthodontists, and doctors on the team need to communicate as well. In some cases, a dentist can remove a tooth at the same time as a surgeon performs another type of procedure. Intra-team communication is also important for emotional well-being. For instance, if a child is being teased about dental care or equipment, a counselor or clinical psychologist on the team may be able to help. These coordinated efforts among the team specialists help to shorten a patient’s recovery time, lower cost, and raise comfort.”

All publications are available to download for free. For more information about cleft and craniofacial care, view a complete list of ACPA’s publications on the ACPA Family Services website.