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For the Parent of Newborns with Cleft Lip and/or Palate

By Alexis Giannattasio posted 01-15-2020 10:09 AM


This week, we shared Callen’s story on the ACPA Family Services website. Callen was born with a unilateral cleft lip and palate just a little more than a month ago–his father was also born with a cleft. Having received excellent care as a child, Callen’s father is confident that he is in good hands with their cleft team.

Just like Callen and his family, it is helpful to have resources for every stage of care, especially in the first few years. ACPA’s newly revised factsheet, For the Parent of Newborns with Cleft Lip and/or Cleft Palate, answers common questions from parents. Parents often ask, “How can we tell relatives and friends about our baby’s cleft?” ACPA’s factsheet provides the answer:

In order to share the news with others, parents first need to care for themselves. It is important to allow space to process your own emotions. If you have questions about your child’s care, be sure to ask the treatment team. While not all questions can be answered right away, it may be helpful to gather information and to take time to work through it. This way, you will be able to have informed conversations with friends and family when you are ready.

It is important to be honest and direct with loved ones about your child’s cleft. Their support can be extremely valuable for you and for your child. Having support can even have a positive effect on treatment, starting in infancy and extending into childhood and beyond.

Download a copy of For the Parent of Newborns with Cleft Lip and/or Cleft Palate today. For more resources about cleft and craniofacial care, visit the ACPA Family Services website.