ACPA offers information and resources about cleft and craniofacial care for patients and families. Developed by experts in the cleft and craniofacial field, ACPA publications cover a variety of topics including life stages, treatment and care, school age support and more.
ACPA’s newly updated booklet, Your Baby’s First Year, provides helpful information to help new parents along their journey, including information about individualized care and support for the family.
“As the parent of a child born with cleft lip and/or palate, you already understand the surprise of being told that your child has a condition that will require treatment, possibly over a period of years. It is not unusual to feel overwhelmed by this news, and also overwhelmed by the adjustments required of any new parent. The first step in coping is to learn to acknowledge and accept these unfamiliar and possibly painful feelings. It is important to take time during the first year to allow these emotions to surface and heal for you and other family members.
At first, it is common to seek comfort and support from family and friends, and then from support groups made up of other parents in similar situations. If the emotional pain does not lessen after the first six months of your child’s life, or if it interferes with your ability to function at home, at work, or in your relationships, you may want to speak with a qualified mental health professional. Your team or your primary care doctor may be able to recommend someone. They may also know of a mental health facility that accepts fee reductions or third-party payments. Your emotional health is essential to your ability to help your child.”
Download Your Baby’s First Year for free. For more information and other resources about cleft and craniofacial care, visit the ACPA Family Services website.