Latest Blogs

Below is a list of blogs written by ACPA members and the National Office Team.

If you are interested in writing a blog, please email Alexis Giannattasio for more information.

*Disclaimer-The American Cleft Palate-Craniofacial Association claims no responsibility for the content published by others on its web site. Published content does not imply endorsement of the organization or the content of the meetings.

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Mark your calendars for ACPA's first ever Fall Symposium on December 3, 2020 from 12:30-5:30 PM EST. This one-of-a-kind virtual event will explore the theme of patient and family engagement in cleft and craniofacial care. The symposium will feature a multidisciplinary group of cleft and craniofacial care providers, as well as patients and families themselves–all sharing their perspectives on how to cultivate and maintain connections with the communities we serve. The Fall Symposium program will feature many engaging sessions, including the following: Team Communication and Care Plan Dissemination/Developing Effective Care Plans Panel Barriers to ...
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The new issue of The Cleft Palate-Craniofacial Journal  (CPCJ) is now available. All ACPA Members receive a free subscription to  CPCJ  - just  log-in to your ACPA account  to access the online version.   Not a member and want journal access?  Join now  ($250 for 2020 National Active Membership) or  purchase an individual subscription  ($324 for print and e-access). Factors Influencing Timely Preparation of Alveolar Bone Grafting: A Survey of the ACPA Diana S. Jodeh, MD, Aleshia J. Pringle, APRN, Taryl Crisp, BSN, RN, CCM, S. Alex Rottgers, MD Sociodemographic Factors That Influence the Choice to Pursue Nasoalveolar Molding: One Pediatric Hospital’s ...
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Kirsty, ACPA’s 2020 College Scholarship Recipient, was born with Frontonasal Dysplasia. Kirsty studies nursing at Hinds Community College and hopes to help children who are experiencing struggles similar to those she faced while growing up. “I have always wanted to help small children who believe they are not strong enough to push through their struggles with their head held high. I want to be the person who shows them that they can triumph through their hardships–because I did. I have always wanted to help children that have or are going through similar struggles, and I think going into the nursing field is the perfect opportunity to do just that. Throughout ...
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Volunteer with ACPA

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How would you like to be more involved in ACPA in 2020 and 2021?  Please take the Engagement Survey to let us know if you'd like to work on the blog, participate in the ACPA Online Community, present a webinar, submit an article to the journal, work with ACPA Family Services or volunteer for a committee.  Take the Survey. We will distribute another survey in early 2021 with additional opportunities. All survey responses are due by September 30, 2020.
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Rania A. Habib MD, DDS is a Board Certified Oral and Maxillofacial Surgeon who subspecialized in Pediatric Craniofacial Surgery. She is a clinical instructor at the University of Pennsylvania, Penn Dental Medicine. She left a lucrative job in private practice to pursue fellowship in Pediatric Craniofacial Surgery. We asked: Why?    "My passion is treating pediatric patients. I am able to put my patients and their parents at ease with minimal effort. My happiest days are my pediatric days.    As a fellowship trained Cleft & Craniofacial Surgeon, I have the privilege of treating patients that require complex facial reconstruction. ...
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During the month of September, ACPA is joining with the Children’s Craniofacial Association (CCA) to celebrate the 16th Annual Craniofacial Acceptance Month (CAM). In honor of CAM, we are featuring ACPA publications that provide educational information about craniofacial differences. With reliable information from cleft and craniofacial experts in the field, ACPA publications such as “ Treacher Collins Syndrome ” answer common questions and can be used to spread awareness of craniofacial differences. A common question that parents have is, “Where can I find support?” The booklet provides the following information: Every parent will have his or her own ...
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ACPA's Care Coordination SIG and 22q11.2 Related Disorders SIG are both accepting nominations for the Co-Chair position. The Co-Chair assists the chair and serves in this role for two years. The Co-Chair will automatically receive the nomination for Chair at the end of the current Chair's term.   All nominees must meet the following requirements: Be an ACPA Active Member in good standing for at least three consecutive years. Currently hold a cleft or craniofacial related position Commit to leading the SIG Discussion Forum at ACPA’s Annual Meeting. All nominations are due Thursday, September 10, 2020. Submit a nomination for ACPA's 22q11.2 Related ...
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Due to impact on teams from the COVID-19 pandemic, ACPA is waiving the self-audit report for Approved Teams in 2020. All ACPA Approved Teams not submitting an application this year will still be expected to pay the 2021 team listing fee of $185 and verify their team listing information to maintain their approval status. Invoices and further details will be emailed to team leaders and coordinators within the next few weeks
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Register for Upcoming Webinars

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ACPA offers educational webinars to cleft and craniofacial care providers worldwide.  Register  to attend a live or on-demand session today! Upcoming webinars include: Cleft Lip Repair: Measure Twice, Cut Once Thursday, August 13 th at 2:00 PM ET Strategies for optimizing audiologic assessments and minimizing sedation for young children with cleft lip/palate and craniofacial conditions Tuesday, August 25th at 4:00 PM ET Feeding Challenges in Oral Clefting: A Multidisciplinary Team Approach to Supporting Growth and Avoiding Malnutrition Tuesday, September 15th at 4:00 PM ET T&A in Patients with Cleft Palate and/or ...
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The new issue of  The Cleft Palate-Craniofacial Journal  (CPCJ) is now available. All ACPA Members receive a free subscription to  CPCJ  - just  log-in to your ACPA account  to access the online version.   Not a member and want journal access?  Join now  ($250 for 2020 National Active Membership) or  purchase an individual subscription  ($324 for print and e-access). Oral Health-Related Quality of Life in Chinese Children With Orofacial Cleft Jiu Lin, MD, Xinyi Fang, MD, Pin Ha, PhD, Min Fu, MD, Hang Wang, PhD A Retrospective Mixed Longitudinal Study of Tooth Formation in Children With Clefts Sarah B. Kimbrough, DMD, William G. Parris, DDS, MS, Richard ...
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ACPA hosted its first ever virtual discipline forum last week. Don’t worry if you weren’t able to join–ACPA will be hosting virtual discipline forums again in the future. Virtual discipline forums allow ACPA members to continue the conversation on cleft and craniofacial care and provide an opportunity to continue networking with colleagues, from the comfort of their couch. During the ongoing COVID-19 pandemic, it is important for members to stay connected­–now more than ever. Upcoming virtual discipline forums include: Mental Health Discipline Forum August 11, 2020 at 3:00 PM ET View Agenda Oral/Maxillofacial Surgery Discipline Form ...
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CHAPEL HILL, N.C. / August 4, 2020 – The American Cleft Palate-Craniofacial Association (ACPA) is pleased to announce the appointment of Adam Levy as the organization’s new Executive Director. Levy succeeds Wendy-Jo Toyama, MBA, CAE, who left ACPA in April 2020. “Thank you to the search committee, co-chaired by Scott A. Dailey, PhD, CCC-SLP, for leading ACPA in this process,” said Patricia A. Beals, DMD, MS, ACPA President. “ACPA’s passionate members and staff have continuously worked to create a world where people with cleft and craniofacial conditions thrive.  We are excited to have Adam bring his vision and passion to lead ACPA into the future.” Levy, ...
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Throughout the entire month of July, patients, families and professionals in the cleft and craniofacial community have been celebrating those born with facial differences and spreading awareness of the lifelong care journey experienced by many here in the United States. Awareness month looked a little bit different this year due to the ongoing pandemic, but that didn’t stop ACPA Awareness Allies from advancing the cause on social media. ACPA Awareness Allies took advantage of their online presence this month to share a personal message about why they choose to spread awareness. Whether they are a patient themselves or have a loved one born with a facial difference, ...
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Register today for ACPA’s webinar, 70 Year History of Unilateral Cleft Lip Repair: A Simulator Based Symposium, presented by ACPA Member Court B. Cutting, MD. This innovative session follows the progression of unilateral cleft lip repair over the past 70 years using a biophysically accurate surgical simulator. The webinar was originally accepted as a Teaching Course for ACPA's 77th Annual Meeting and is available on demand at a discounted rate. Register for the webinar. Continuing education is available through ACCME. This nursing continuing professional development activity was approved by the North Carolina Nurses Association, an accredited approver ...
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ACPA Member Karin Vargervik, DDS recently received the 2020 Humanitarian Award from the American Association of Orthodontists. The 2020 AAO Awards honor those who have made outstanding contributions and exemplified excellence in the specialty. Dr. Vargervik was also featured on AAO’s website: After completing her orthodontic education in her native Norway, Dr. Vargervik came to Harvard University on a Fulbright Scholarship. She then accepted a research appointment at the University of California at San Francisco, also teaching and providing patient care to children with craniofacial birth defects. In 2006, Dr. Vargervik began volunteering with Alliance ...
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Patients, families and professionals are busy spreading cleft and craniofacial awareness across the United States in honor of National Cleft and Craniofacial Awareness Month. On Thursday, July 16, ACPA President Patricia A. Beals, DMD, MS will join ACPA Member Patricia D. Chibbaro, RN, MS, CPNP on Dr. Radio to discuss cleft and craniofacial care and the importance of spreading awareness. Dr. Radio is a Sirius XM Radio station which broadcasts health and medical information programmed by the NYU Langone Medical Center. The channel is located on channel 110 on both the XM Satellite Radio service and on the Sirius Satellite Radio service. The episode on awareness ...
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The new issue of  The Cleft Palate-Craniofacial Journal  (CPCJ) is now available. All ACPA Members receive a free subscription to  CPCJ  - just  log-in to your ACPA account  to access the online version.   Not a member and want journal access?  Join now  ($250 for 2020 National Active Membership) or  purchase an individual subscription  ($324 for print and e-access). “I smile, but Without Showing My Teeth”: The Lived Experience of Cleft, Lip, and Palate in Adults Asgjerd Litleré Moi, CCN, MSc, PhD, Harald Gjengedal, DDS, PhD, Kari Lybak, RN, MSc, Hallvard Vindenes, DDS, MD, PhD Defining Risk of Postoperative Obstructive Sleep Apnea in Patients With 22q11.2DS ...
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National Cleft and Craniofacial Awareness Month is here. Although some celebrations look different this year due to the on going COVID-19 situation, many ACPA Approved Teams are still finding creative ways to continue caring for patients and families as they spread awareness. The ACPA Approved Team at Inova Children’s Hospital is using telehealth to stay connected with their patients and families. Team members schedule individual telehealth visits through their private practices and then meet for a team conference through Zoom for the scheduled clinic day. “We thought the community would enjoy seeing photos of our team connecting. Our families really appreciate ...
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ACPA has extended all webinar discounts through the end of July. The offer includes a discount for webinar collections (priced at $69.99 for members and $89.99 for non-members) and 50% off all registration fees for paid webinars. Continuing education is available through ACCME and ASHA. The upcoming webinars listed below are nursing continuing professional development activities approved by the North Carolina Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation. See the course descriptions for more information. Available collections include: ACPA Team Care/Care Coordination Collection ...
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In response to the current events in America and across the world, SAGE Publishing is sharing resources on healthcare and inequality. The collection of articles, created by publishers of The Cleft Palate-Craniofacial Journal , is available for free. The articles are intended to support researchers in future scholarship and develop their critical work; educators as they discuss the impacts of systematic racism with students; and policymakers and advocates in their fight to make sweeping reform. The collection includes titles such as “ Racial Bias and Public Policy ,” “ The Importance of Teaching History of Inequities in Public Health Programs ,” “ Disrupting ...
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