Latest Blogs

Below is a list of blogs written by ACPA members and the National Office Team.

If you are interested in writing a blog, please email Alyssa Kirkman for more information.

*Disclaimer-The American Cleft Palate-Craniofacial Association claims no responsibility for the content published by others on its web site. Published content does not imply endorsement of the organization or the content of the meetings.

Be the first person to recommend this.
The new issue of The Cleft Palate-Craniofacial Journal (CPCJ) is now available. All ACPA Members receive a free subscription to CPCJ - just log-in to your ACPA account to access the online version.   Not a member and want journal access?  Join now ($240 for 2018 National Active Membership) or purchase an individual subscription ($324 for print and e-access). Issue 56.10 Table of Contents Scandcleft Project, Trial 1: Comparison of Speech Outcome in Relation to Timing of Hard Palate Closure in 5-Year-Olds With UCLP   Elisabeth Willadsen, PhD, Anette Lohmander, PhD, Christina Persson, PhD, Maria Boers, SLP, Mia Kisling-Møller, SLP, Christina ...
0 comments
Be the first person to recommend this.
We’re excited to announce two newly revised publications for patients and families: Treacher Collins Syndrome and Dental Care for a Child Born with Cleft Lip and/or Palate . Treacher Collins Syndrome , previously an ACPA factsheet, is a booklet that answers common questions related to the craniofacial syndrome. The booklet covers topics such as facial differences related to Treacher Collins Syndrome and possible treatment options. It also features 2019 ACPA Scholarship Recipient Casey on the front cover, who was born with TCS. ACPA’s newly revised factsheet, Dental Care for a Child Born with Cleft Lip and/or Palate , addresses different types of ...
0 comments
Be the first person to recommend this.
The inaugural Cleft Out Foundation 5k was held on November 2, 2019, in Charlotte, North Carolina. The race was an opportunity to raise awareness for the foundation and provide funding for cleft care in the local community. The Cleft Out Foundation is a 501(c)3 non-profit organization that helps Charlotte-area families to meet the many financial needs associated with treating children born with Cleft Lip & Palate. With a goal of over 100 participants, the Cleft Out Foundation exceeded its expectations. Both runners and walkers showed up for the race on a chilly Saturday morning. Children who have benefited from the organization's grants and their families ...
0 comments
Be the first person to recommend this.
In response to the huge demand from researchers, the SAGE Campus team – who create interactive e-learning resources for researchers – released a brand-new course revealing the secrets of successfully getting published in quality journals. How to Get Published , created by publishers of The Cleft Palate-Craniofacial Journal , provides a fantastic solution for researchers who may not be able to attend the live sessions. The introductory course covers three main topics: 1. Choosing a journal Where to start when choosing a journal Factors to consider before final selection High- vs low-risk submissions 2. Preparing your paper for submission ...
0 comments
Be the first person to recommend this.
During this season of giving, we invite you to join us to make a difference in the cleft and craniofacial community. By making a charitable contribution, you will provide resources to patients, families and professionals. There are many opportunities for you to give back and support ACPA programs. When you support ACPA with a charitable donation, be sure to join us on social media and let us know! Simply share a photo with the statement, “I support ACPA because…” and use the hashtag, #CreateAWorld. Then challenge three friends to make a donation and share a similar post. Don’t forget to tag ACPA on Facebook, Twitter and/or Instagram. Help our fall fundraising ...
0 comments
Be the first person to recommend this.
Earn continuing education credits at any time with on-demand courses on ACPA Online Learning . ACPA offers courses on a variety of topics, including Surgical Procedures,Speech and Audiology, Psychosocial Outcomes, Ethical Issues, Care Coordination and more. Register for a live or on-demand webinar today. All webinars are available as on-demand courses within a week. Upcoming live webinars include: Ethical Considerations in Advertising Cleft and Craniofacial Care Services November 6, 2019 4:30 PM ET Multi-Team Experiences of Care Coordination November 14, 2019 2:00 PM ET Transition of Care for Young Adults with Cleft Lip and Palate: We’ve ...
0 comments

JHACH Family Fun Day

Be the first person to recommend this.
The Johns Hopkins All Children’s Cleft and Craniofacial (CCF) Team hosted a family fun day on July 13, 2019 in St. Petersburg, FL, where more than 50 patients with cleft and craniofacial differences and their families played games, reconnected with their care team and each other. Our cleft and craniofacial program treats patients throughout the Tampa Bay, Florida region and neighboring counties. We had a face painter, a photo booth, breakfast snack station, coloring and craft center, blow up bowling, Jenga, autograph memory book station, beach balls, giant Connect 4, corn hole and many outdoor family fun activities at a local nature preserve. The photographer ...
0 comments
Be the first person to recommend this.
In this podcast, Pat Chibbaro interviews Sibyl Sheve and Sybill Naidoo about their article, "Survey of North American Multidisciplinary Cleft Palate and Craniofacial Team Clinic Administration" published in Volume 56, Issue 4 of The Cleft Palate-Craniofacial Journal. Click here to read the article. Stream the podcast: http://sageclinical.sage-publications.libsynpro.com/webpage/category/The%20Cleft%20Palate-Craniofacial%20Journal Direct download: CPCJ_Podcast_072519.mp3 #Journa
0 comments
Be the first person to recommend this.
The 2019 CleftStrong 5K was held October 12 in San Antonio, Texas. The 6 th  Annual event was an opportunity for the local community – and virtual racers from around the country – to come together to support those born with cleft lip/palate and other craniofacial conditions, with all proceeds benefiting the American Cleft Palate-Craniofacial Association. Cloudy weather and cold winds didn’t stop attendees. They arrived dressed in mouse ears, Star Wars costumes, witch hats and more for the Disney themed race. Event founders Chelsea and Ray Ortiz, parents of a child born with cleft, joined racers, a crowd of volunteers, and sponsors for the opening ceremony, ...
0 comments
Be the first person to recommend this.
You’re invited to join us this November for ACPA’s Fall Fundraising Campaign. During this season, there will be many opportunities to make a charitable donation to ACPA and participate in the end of year giving campaign. As part of the campaign, ACPA is hosting a social media challenge to raise awareness of cleft lip, cleft palate and other craniofacial conditions while encouraging donations to ACPA. We’re asking members of our community to post a photo on Facebook and/or Instagram including the statement “I support ACPA because…” with the hashtag, #CreateAWorld. Then challenge three friends to make a donation to ACPA and share a similar post on social media. ...
0 comments
Be the first person to recommend this.
ACPA has some exciting webinars planned as 2019 winds to a close.  Register to attend a live or on-demand session today! Upcoming webinars include: Speech-Language Services for Culturally and Linguistically Diverse Populations with Cleft Conditions October 17, 2019 2:00 PM ET Anatomy of The Unilateral Cleft Nasal Deformity and Its Correction October 23, 2019 6:00 PM ET Ethical Considerations in Advertising Cleft and Craniofacial Care Services November 6, 2019 4:30 PM ET Multi-Team Experiences of Care Coordination November 14, 2019 2:00 PM ET Transition of Care for Young Adults with Cleft Lip and Palate: We’ve Got ...
0 comments
Be the first person to recommend this.
The new issue of The Cleft Palate-Craniofacial Journal (CPCJ) is now available. All ACPA Members receive a free subscription to CPCJ - just log-in to your ACPA account to access the online version.   Not a member and want journal access?  Join now ($240 for 2018 National Active Membership) or purchase an individual subscription ($324 for print and e-access). Issue 56.9 Table of Contents The Birth Prevalence of Cleft Lip and/or Cleft Palate After the 2011 Tōhoku Earthquake and Tsunami Yoshimichi Imai, MD, PhD, Takehiko Sanada, MD, Masahiro Tachi, MD, PhD Velopharyngeal Structural and Muscle Variations in Children With 22q11.2 Deletion ...
0 comments
Be the first person to recommend this.
This October, ACPA is participating in National Bullying Prevention Month, an annual campaign to keep all youth safe from bullying. One key step to preventing bullying is to empower individuals of all ages to recognize their own value and interact confidently with their peers. ACPA offers publications to help children born with facial differences navigate challenging social situations that may occur. Help with Social Situations , an ACPA factsheet with information from cleft and craniofacial experts, answers the question: how can parents help with teasing? First, talk with your child. Ask how she/ he feels about the situation and wants to handle it. ...
0 comments
Be the first person to recommend this.
Join Richard Bruun DDS and Lindsay Schuster DMD, MS for an online session on Cleft Orthognathic Surgery- Orthodontic Considerations .  The live session will be October 09, 2019 4:30 PM Eastern.  The session will also be available on-demand. This course will review considerations of orthodontic planning, preparation and decompensation for orthognathic surgery as well orthodontic finishing and prosthodontic rehabilitation.  Topics include: Review of terminology Early and periodic tx plan “synchronizing” between Orthodontist and Surgeon Cephalometric Analysis Model Analysis Facial analysis and treatment planning  2-D and 3D dental, facial, and ...
0 comments
Be the first person to recommend this.
The ACPA Approved Team at UNC Craniofacial Center is hosting a Fall into Kindness Festival for all patients and families on Sunday, October 13. All patients and families in the local area are invited to come out to the festival at the UNC School of Dentistry for a showing of Hocus Pocus and Charlie Brown. There will be a caramel apple bar, family photo booth, teen lounge, trick or treating, arts and crafts, free popcorn and a costume contest! There is free parking in Dogwood Parking Deck (Visitors Parking). For more information, visit the team’s event page. Share your team news with us for a chance to be featured on the blog and/or social media
0 comments
Be the first person to recommend this.
Every year, the Wrede family hosts a Smile Stand at their home on World Smile Day in honor of their son, Austin, who was born with cleft lip and palate. This year, the family is partnering with the Duke Cleft and Craniofacial Center to increase their impact as they come together to support other patients with cleft and craniofacial conditions and the professionals who provide their care. On Friday, October 4 th , the Duke Cleft and Craniofacial Center will partner with the Wrede family to host a series of Smile Stands across Duke’s campus. Each stand will be hosted by one patient and their family and a team member, and will include the child’s smile story, ...
0 comments
Be the first person to recommend this.
During the month of September, ACPA is joining with the Children’s Craniofacial Association (CCA) to celebrate the 15th Annual Craniofacial Acceptance Month (CAM). In honor of CAM, we are featuring ACPA publications that provide educational information about craniofacial differences. With reliable information from cleft and craniofacial experts in the field, ACPA publications such as Pierre Robin Sequence answer common questions and can be used to spread awareness of craniofacial differences. Pierre Robin Sequence (pronounced Ro-BEN) is a birth condition that involves the jaw, the tongue, and the roof of the mouth. At about 7-10 weeks of pregnancy, ...
0 comments
Be the first person to recommend this.
ACPA Members! How would you like to be more involved in ACPA in 2019 and 2020?  Please a take the Engagement Survey to let us know if you'd like to work on the blog, participate in the ACPA Online Community, present a webinar, submit an article to the journal, work with ACPA Family Services or volunteer for a committee.  Take the Survey. We will distribute another survey in early 2020 with additional opportunities. All survey responses are due by September 30, 2019. Take the Survey. #Committee #PublicationsDevelopment #
0 comments
Be the first person to recommend this.
ACPA’s 2020 Association Awards and Professional Scholarships are now open.  Please read about the opportunities below and consider making a nomination or applying for a scholarship. You are encouraged to submit a nomination by 10/4/2019 for the following awards: Honors of the Association represents the highest expression of respect and gratitude ACPA bestows. It is granted to those individuals whose lifetime of research, healthcare delivery, or leadership has advanced, significantly and uniquely, the amelioration of physical, behavioral or social conditions of cleft lip and palate or other craniofacial differences. Nominate a candidate for the 2020 ...
0 comments

Celebrating #PeerReviewWeek2019

Be the first person to recommend this.
ACPA is proud to celebrate Peer Review Week and the essential role that peer review plays in maintaining scientific quality. The theme for this year’s celebration is “Quality in Peer Review.” Through The Cleft Palate-Craniofacial Journal (CPCJ), ACPA plays an important role in furthering research and science related to cleft lip, cleft palate and craniofacial differences. We'd like to thank all of the professional peer reviewers who contribute to CPCJ and enable us to make such an impact. Thank you for your service to ACPA and the profession. You are all critical to the success of this world-class publication. Make sure to follow @PeerRevWeek or look ...
0 comments